| From the Editor's Desk
What Does Wellness Mean When You're Living With an Incurable Disease? Muscular dystrophy came for my vision first, although I did not know it at the time. On the second Friday morning of April 2020, I realized quite suddenly I couldn’t read out of my right eye. I could see, but I couldn’t distinguish words. In the bedroom, I asked my wife to place a book I had never seen on the dresser. With my left eye covered, I turned around and: nothing. The cover was blended like the clouds of a Bob Ross painting. Four days later, an ophthalmologist examined me. I hadn’t noticed anything wrong with my left eye (yet), but he certainly did. You have cataracts, he told me, in both eyes, at age 31.
Two months later, I started feeling this immense ache up and down my arms. Then I began losing strength in my hands, which I noticed while changing the oil in my car. With the wrench in my right hand, I went to loosen the plug on the oil pan, and my wrist and fingers felt like Jell-O. When I tried to let go of the wrench, my fingers instead curled toward my palm, contorting my hand like a claw. It was the same if I tried opening a jar or turning a doorknob.
Continued here
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